Member Profile

Epilepsy Foundation New England, Inc.

Epilepsy Foundation New England is a 501 c 3 nonprofit organization that serves the 100,000 people in Maine, Massachusetts, New Hampshire, and Rhode Island who have epilepsy, and their families.  Whether you are newly diagnosed, a long -time advocate, a young person, a parent, a doctor, a teacher - Whether you are looking to hold a fundraiser, donate, attend a walk, or donate clothes - and Whether you want to volunteer, go to a support group, get help with employment, or go to camp, know we are here to help you every step of the way. Our vision statement is Help for Today, Hope for Tomorrow.

One of our proudest accomplishments was welcoming the Matty Fund into EFNE and launching The Matty Project in January. The RI‐based Matthew Siravo Memorial Foundation was created by Richard and Debra Siravo in 2003 after their five‐year‐old son, Matty, passed away from a prolonged seizure.The Matty Project programs are now being offered to the EFNE community throughout New England. Camp Matty, The Matty Memorial 5K Run/Walk, and the “My Friend Matty” epilepsy awareness program are just some of the successes of The Matthew Siravo Memorial Foundation’s legacy that we are grateful to be able to offer. 

Thanks to the kindness of more than 4,500 donors (up 60% from last year), we have doubled the size of our camp programs, started retreats for Young Adults, and Adults, launched an Employment Services program, and much more! 

Because of the generosity of our donors, last spring, we awarded six $2,500 scholarships to people with epilepsy pursuing higher education and training.

Since launching targeted Athletes vs. Epilepsy®, Teens Speak Up®, and Leadership Councils at EFNE last fall, more than one-hundred and fifty 13-29 year olds have gotten involved. We are connecting young people to each other and encouraging our next generation of leaders. 

Our Advocacy and Public Policy experts engage in constant, behind the scenes, systems advocacy to create or change laws or regulations to support people with epilepsy (e.g., access to health insurance). The backbone of this work is our grassroots network of people willing to share their personal stories of how policies affect them. Last year, we saw a 20% increase (to 3,425) joining our Speak Up Speak Out network.

Call or Visit the Foundation's Headquarters

335 Main Street, Unit 8
Wilmington, MA 01887
Phone: 617-506-6041
Fax: 617-506-6047

Office Hours: 
Monday – Friday: 9AM – 5PM
Saturday: Closed
Sunday: Closed

Posted on: Thursday, September 6, 2018

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